We are pleased that you are interested in our website.
The German Center for Neurodegenerative Diseases / Deutsche Zentrum für Neurodegenerative Erkrankungen e. V. (hereinafter referred to as “DZNE”) takes the protection of personal data very seriously.
As a general rule, you can use our website without providing any personal data.
This data protection declaration refers to our website.
(As of January 14, 2019, version 1.3)
The controller responsible for data processing pursuant to the General Data Protection Regulation (hereinafter referred to as “GDPR”) and other national data protection laws is:
Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)
Venusberg Campus 1, Building 99
53127 Bonn
Germany
+49 228 43302-0
rheinland-studie(at)dzne.de
www.rheinland-studie.de
Represented by the Executive Board:
Prof Pierluigi Nicotera MD, PhD (Chief Science Officer and Chairman of the Executive Board)
Dr Sabine Helling-Moegen, LL.M. (Chief Administrative Officer)
CONTACT DATA OF THE DATA PROTECTION OFFICER OF THE DZNE
Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)
Data Protection Office
+49 228 43302-0
datenschutz(at)dzne.de
Generally, we only process the personal data of our users if it is necessary in order to provide a functional website and make available our content and services. The processing of our users’ personal data is, as a rule, only carried out with their consent. An exception applies in cases where, obtaining prior consent is factually impossible and where the processing of data is permitted by law.
Insofar as we obtain the consent of the data subject for processing personal data, point a) of Article 6 (1) of the European General Data Protection Regulation (hereinafter referred to as “GDPR”) serves as legal basis.
When processing personal data that is required for the performance of a contract which the data subject is party to, point b) of Article 6 (1) of the GDPR serves as the legal basis. This also applies to processing operations that are necessary to carry out pre-contractual measures.
If the processing of personal data is required to fulfil a legal obligation that our company is subject to, point c) of Article 6 (1) of the GDPR serves as the legal basis.
If processing is necessary to safeguard a legitimate interest of DZNE or a third party and if the interests, fundamental rights and freedoms of the data subject do not override the interest of DZNE, point f) of Article 6 (1) of the GDPR serves as the legal basis for processing.
The personal data of the data subject will be deleted or its processing restricted as soon as the purpose of storage ceases to apply. Furthermore, data may be stored if such storage is stipulated by the European or national legislator in EU regulations, laws or other rules that we are subject to. The restriction of processing or the deletion of data shall also be carried out if the storage period prescribed by the aforementioned standards has expired unless there is a need for the further storage of data for the conclusion or performance of a contract.
Every time our website is accessed, the system of our host automatically collects data and information from the system of the computer that is accessing our website. During that process the following data is collected:
In addition, the data is stored in the log files of our host. This data is not stored together with other personal data of the user.
The legal basis for the temporary storage of data and log files is point f) of Article 6 (1) of the GDPR.
The temporary storage of the IP address by the host is necessary to enable delivery of the website to the user's computer. For this purpose, the IP address of the user must remain stored for the duration of the session.
The data is stored in log files to facilitate the functionality of the website. In addition, the data is used to ensure the security of our IT systems. During that process an evaluation of the data for marketing purposes does not take place.
These purposes constitute our legitimate interest in data processing according to point f) of Article 6 (1) of the GDPR.
The data will be deleted as soon as it is no longer needed to achieve the purpose for which it was collected. In the case of the collection of data for the provision of the website, this is the case when the respective session has ended.
If the data is stored in log files, this is the case after seven days. The data may be stored for a longer period of time. In such a case, the IP addresses of the user are deleted or masked so that they can no longer be allocated to the caller unless they are needed for the detection of criminal offences.
The collection of data for the provision of the website and the storage of data in log files is essential for the operation of the website. Consequently, there is no possibility of objection on the part of the user.
We do not use cookies on our website by default without your consent. Only after your consent we process anonymous data (see: Webanlayse by Matomo).
During selected events, it is our concern to take photos and, if necessary, make video recordings for documentation purposes. We will inform you in good time with the announcement of an event, as well as on site, if we want to make these recordings. The recordings concern images, or images and sounds, of guests at our events.
Insofar as we obtain the consent of the data subject for processing operations of personal data, Article 6 (1) lit. a European Data Protection Regulation (EU-DS-GVO) serves as the legal basis. If the processing is necessary to protect a legitimate interest of the DZNE or a third party and if the interests, fundamental rights and freedoms of the data subject do not override the former interest, Art. 6 (1) lit. f EU-DS-GVO serves as the legal basis for the processing.
We process personal data of our guests of events for the publication of photographic material, but not to bring about automated decisions including profiling or to evaluate or monitor performance. The publication may concern press releases to press editorial offices, contributions on television, articles in print media, on the Internet or social media platforms. In addition, publication is also understood for DZNE's own presentations and image films.
Information is accessible worldwide on the Internet, can be found using search engines, and can be linked to other information, from which personality profiles can be created under certain circumstances. Information posted on the Internet, including photos, can be copied and redistributed. There are specialized archiving services whose aim is to permanently document the state of certain websites on specific dates. This may mean that information published on the Internet can still be found elsewhere even after it has been deleted from a DZNE site.
The personal data of the data subject will be processed until revoked and deleted or restricted in processing as soon as the purpose of storage ceases to apply. Storage may take place beyond this if this has been provided for by the European or national legislator in Union regulations, laws or other provisions to which we are subject. Restriction of processing or deletion of data will also take place if a storage period prescribed by the aforementioned standards expires, unless there is a need for further storage of the data for the conclusion or performance of a contract.
At the beginning or during the event, please inform the person taking the photos or video recordings if you wish to withdraw your objection.
You may want to subscribe to a free newsletter on our website. When registering for the newsletter, the following data from the input mask will be transmitted to us as a minimum.
In addition, the following data is collected upon registration:
During the registration process, your consent for processing the data is obtained and reference is made to this data protection declaration.
In connection with the processing of data for the dispatch of newsletters, no data is passed on to third parties. The data will only be used for sending the newsletter.
If the user has given his consent, the legal basis for the processing of data after having registered for the newsletter is point a) of Article 6 (1) of the GDPR.
The user's e-mail address is processed in order to deliver the newsletter and prevent misuse of the services or the e-mail address used. Any additional personal data processed during the registration process is used to establish personal contact.
The data will be deleted as soon as it is no longer needed to achieve the purpose for which it was collected. The user's surname, first name and e-mail address will therefore be stored for as long as the subscription to the newsletter is active. Other personal data collected during the registration process will generally be deleted after a period of seven days.
The subscription to the newsletter may, at any time, be cancelled by the respective user. Users can unsubscribe from the newsletter at any time by e-mail abbestellen.
We use the open-source software tool Matomo (formerly PIWIK) on our website to analyse the surfing behaviour of our users. The software sets a cookie on the user's computer (for cookies, see already above). If individual pages of our website are called up, the following data is stored:
The software runs exclusively on the servers of our website. A storage of the personal data of the users only takes place there. The data is not passed on to third parties. The software is set in such a way that the IP addresses are not stored completely, but 2 bytes of the IP address are masked (ex: 192.168.xxx.xxx). In this way, an assignment of the shortened IP address to the calling computer is no longer possible.
The legal basis for the processing of users' personal data is Art. 6 (1) lit. a EU-DS-GVO.
The processing of the users' personal data enables us to analyse their surfing behaviour. By evaluating the data obtained, we are able to compile information about the use of the individual components of our website. This helps us to continuously improve our website and its user-friendliness.
The data is deleted as soon as it is no longer required for our recording purposes. In our case, this is the case after 6 months.
Cookies are stored on the user's computer and transmitted to our site by the user. Therefore, you as a user also have full control over the use of cookies. By changing the settings in your Internet browser, you can disable or restrict the transmission of cookies. Cookies that have already been stored can be deleted at any time. This can also be done automatically. If cookies are deactivated for our website, all functions of the website can regularly be used in full.
We offer our users the option of opting out of the analysis process on our website. You can reverse your decision for analysis cookies at any time here.
Your browser allows cookies to be set:
You can find more information on the privacy settings of the Matomo software at matomo.org/docs/privacy/.
On our website, we offer users the opportunity to register for participation in the study by providing their personal code and personal data previously sent to them in writing. The data is entered and stored in an input mask. The data will not be passed on to third parties. The following data is regularly collected during registration:
The following data is also stored at the time of registration:
As part of the registration process, the user's consent to the processing of this data is obtained.
The legal basis for the processing of the data, if the user has given his or her consent, is Art. 6 (1) lit. a EU-DS-GVO.
The collection of data within the scope of registration for study participation serves at least the purpose of organizational planning and implementation of study participation. Or in the context of additional declarations of consent.
The data will be deleted as soon as they are no longer required to achieve the purpose for which they were collected. The data collected as part of the registration for study participation will be deleted when they are no longer required.
As a user, you have the possibility at any time to have the data stored about you changed. The user directs his or her revocation to the responsible person under the contact options given there.
If your personal data is processed, you are a data subject within the meaning of the GDPR and have the following rights vis-à-vis the controller.
You have the right to obtain from us a confirmation as to whether or not personal data concerning you are processed by us.
If this is the case, you are entitled to request the following information from us:
You have the right to ask us to rectify and/or complete personal data concerning you if the processed personal data is incorrect or incomplete. This rectification will be carried out without undue delay.
Under the following conditions you have the right to obtain (from the controller) restriction of processing of the personal data concerning you:
Where processing of the personal data concerning you has been restricted, such data shall, with the exception of storage, only be processed with your consent or for the establishment, exercise or defence of legal claims or for the protection of the rights of another natural or legal person or for reasons of important public interest of the EU or a Member State.
If processing has been restricted in accordance with the above conditions, you will be informed by us before the restriction is lifted.
You have the right to ask us to delete the personal data concerning you with undue delay where one of the following grounds applies:
If we have made the personal data concerning you public and if we are obliged, pursuant to Article 17 (1) of the GDPR, to delete the personal data concerning you, we will, taking account of available technology and the cost of implementation, shall take reasonable steps, including technical measures, to inform the controllers processing the personal data that you as data subject have requested the deletion of any links to or copies or replication of such personal data.
The right to deletion shall not apply to the extent that processing is necessary:
If you have exercised your right of rectification, deletion or restriction of processing against us, we are obliged to inform all recipients to whom the personal data concerning you has been disclosed, of this rectification or deletion of the data or restriction of processing unless this proves impossible or involves a disproportionate effort.
You have the right vis-à-vis us to be informed of these recipients.
You have the right to receive the personal data concerning you, which you have provided us with, in a structured, commonly used and machine-readable format. You furthermore have the right to transmit that data to another controller without hindrance from us, where:
In exercising this right, you also have the right to request that the personal data concerning you be transferred directly by us to another controller, where technically feasible. The freedoms and rights of other persons must not be affected hereby. The right to data portability shall not apply to the processing of personal data necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in us.
You have the right to object, on grounds relating to your particular situation, at any time to the processing of personal data concerning you which is based on point (e) or (f) of Article 6 (1) of the GDPR, including profiling based on those provisions. As a result, we no longer process the personal data concerning you unless we demonstrate compelling legitimate grounds for the processing which override your interests, rights and freedoms or for the establishment, exercise of defence of legal claims. Where personal data concerning you is processed for direct marketing purposes, you have the right to object at any time to the processing of personal data concerning you for such marketing, which includes profiling to the extent that it is related to such direct marketing. Where you object to processing for direct marketing purposes, the personal data shall no longer be processed for such purposes. In the context of the use of information society services, and notwithstanding Directive 2002/58/EC, you may exercise your right to object by automated means using technical specifications.
You have the right to revoke your data protection declaration of consent at any time. The revocation of consent shall not affect the legality of the processing carried out on the basis of the consent until revocation.
You have the right not to be subject to a decision based solely on automated processing, including profiling, which produces legal effects concerning you or which affects you similarly significantly.
This shall not apply if the decision:
These decisions, however, shall not be based on special categories of personal data referred to in Article 9 (1) of the GDPR unless point (a) or (g) of Article 9 (2) applies and suitable measures to safeguard your rights and freedoms and legitimate interests are in place. In cases referred to in paragraphs 1. and 3. we implement suitable measures to safeguard your rights and freedoms and legitimate interests, at least the right to obtain human intervention on the part of us, to express your point of view and to contest the decision.
Without prejudice to any other administrative or judicial remedy, you have the right to lodge a complaint with a supervisory authority, in particular in the Member State of your habitual residence, place of work or place of the alleged infringement if you consider that the processing of personal data concerning you infringes the GDPR. The supervisory authority with which the complaint has been lodged shall inform the complainant on the progress and the outcome of the complaint including the possibility of a judicial remedy pursuant to Article 78 of the GDPR.
The competent supervisory authority of DZNE is:
Der Bundesbeauftragte für den Datenschutz und die Informationsfreiheit
Graurheindorfer Straße 153
53117 Bonn
+49 228 997799-0